27th March 2020 – Research Registry now supports More Trials
More Trials is a public campaign started in 2016 to make it much easier to do randomised trials in medicine. It is supported by more than 260 researchers from over 35 countries and a number of leading research organisations
18 May 2019 – Reporting function introduced
A new reports page has been added to both the research registry and the review registry. You can access them here:
These reports will help provide greater transparency and up to date reports on what is being registered. Gradually more data analysis will be added and these developed further.
24 May 2018 – GDPR Compliance
The European Commission approved and adopted the new General Data Protection Regulation (GDPR) in 2016. This regulation aims to give EU-citizens more control over their data, and create uniform privacy rules to enforce across the EU. This will be replacing the EU Data Protection Directive as well as local laws relating to it. Although this law originates in the EU the reach of these regulations is global. Any business holding personal data on customers, prospects, or employees based within the EU are subject to the new regulations. The GDPR defines “personal data” as any information related to a natural person or ‘Data Subject’ that can be used to directly or indirectly identify the person.
The Research Registry will be GDPR compliant in time for the end of the transition period on 25th May 2018. We have also taken numerous steps to bolster security and encryption on the site.
1 April 2018 – Research Registry introduces registration processing fee (RPC)
The Research Registry was free to register since launch in January 2015 and nearly 4,000 registrations have been made across the research and review registries. To date the registry has been staffed by volunteers and has had huge international success. As the registry develops further in line with user demands, its important that we place the registry on a solid footing for the future, ensuring its long term sustainability.
From 1st April 2018, we will begin charging a small fee (shown at the bottom of the registration page), known as the registration processing fee (RPC). It will help cover the costs of further technical development, ongoing IT/infrastructure/hosting costs, staff time/development, ensure quality control/data curation, audit, governance and marketing to raise awareness of the registry. Waivers or discounts in the fee will be considered on a case by case basis and will be geared towards helping those from developing countries register.
We thank all our users for their support to this stage and hope they will continue supporting us as we move forward.